AI Awareness – Lyme Disease

 

While attending family camp this weekend I met a lot of people suffering from various AI diseases. Upwards of 50% of us had dietary restrictions because of this. The kitchen staff was amazing and the camp staff had posted flyers and camp songs about ticks in every bathroom. Lyme disease was forefront on the radar and I wanted to post about it today. I only know 3 people with Lyme, and all of their experiences are different. Their treatment regiments are vastly different. One of them couldn’t find a MD that believed in Lyme Disease. One gave up hope early if ever regaining his health. One common thread for them is nutrition. Good, solid, AIP nutrition does a lot for them. Today we put Lyme Disease out there to help raise awareness. #lymedisease #lymewarrior💚 #aipworks#aip #inflammation#beyourownadvocateforhealth #guthealth#fightfatiguewithfood #ticks#knowledgeispower #dontgiveup

When your child displays Autoimmune symptoms

So this topic is one I hold close to my heart.  At age 2 1/2 we took our daughter off gluten to see if it would help with her bowel withholding.  Note that 7 years ago I was not gluten free, and I didn’t have much understanding as to what it was, or why we should eliminate it from her diet.   What’s bowel withholding?  In short, sometimes Ash would hold in her poop for upwards of a week, and then when she could no longer hold it she would scream bloody murder, it was an extremely painful experience until the next time.  I would worry that a neighbor would call the police – it hurt her that badly and she screamed that loudly.

So back to gluten removal – I took her off breads and crackers and all the things little kids love.  I learned quickly how to make gluten free things and buy pre-made gluten free items.  Again, I didn’t realize that the sugars, corn, rice, etc. used in gluten free products was bad back then.

Ash did much better, and between the gluten free living, and my making up bathroom songs like “Pooping is fun,”  ” I love to poop,” and Bye Bye Turds,” she was able to get to every other day bowel movements.  A huge improvement, and it helped us avoid all the invasive, terrifying testing her Dr wanted to do.  I was pleased with the progress, and she was no longer scared to poop.

Personally, I went back and forth to gluten free and gluten full – and when I went 100% Paleo, Ash was 5.  I finally understood nutrition and  I worked tirelessly to make foods that she enjoyed in a healthier version.  Every birthday party she attended I sent her with paleo cake, and paleo pizza (or whatever food the other kids were eating).  Seriously, I did.  When her father and I divorced, she ate healthy with me and crappy with him.  I could always tell when she had gluten because she’d get pink circles under her eyes, and cough and wheeze all night and have IBS.  Her clothes would fit on Friday when she went to her dads, and when she came home Sunday, she couldn’t button her pants.  (keep in mind, she’s 5 at this point).  Finally through a court order he had to keep her gluten free, and to the best of his knowledge he did, not realizing soy sauce, chicken broth and other basic items usually have wheat in them.  So the struggle continued.

When Ash was in 2nd grade she developed cold uticaria – meaning if she got too cold she’d would be covered in hives.  She was in the nurses office 3-4 times a week during school.  It was AWFUL and no one could tell me what was happening.  Kaiser did a blood panel and said she was fine.  Obviously she was not.  I pleaded with her doctor to do something, and he said to try taking dairy out of her diet.  We did, and amazingly enough, she started doing really well.  So my 7 year old is gluten and dairy intolerant, we can handle this.  But WHY is my child having such issues?  And why are the hives not completely gone?

Ash is now 9 1/2.  Her health is a battle.  She has all the signs of hypoglycemia, her weight is constantly fluctuating, no matter how much she sleeps she’s fatigued, her hives came back this summer and her mood is all over the place too.  She reminds me of me when I was diagnosed with a thyroid issue.   The need to get a hold on whatever is going on before she hits puberty is crucial, and I find that her health is the #1 cause of stress in my life.  I research, and spend hours cooking for her, removing toxins from her life, keeping her childhood as normal as can be.

So today, I emailed my NP and asked if we should do a blood draw and check her thyroid and other key markers to look for autoimmune disease, namely thyroid.  And then I sent Kat a text and I told her that I just emailed my NP and asked what we should test Ash for – Thyroid, fasting glucose, etc. and that I felt Bananas about it.  I was reading what I was writing and felt like an idiot – and I KNOW about all these health issues…and I STILL felt this way.  And Kat text me back and it was this moment of clarity….see the text below:

This text exchange is a reminder that

1. We need to be proactive and work with NPs when MDs don’t get us answers.  Find the WHY – no band aids!

2.  Even thought we LIVE with Autoimmune diseases and KNOW what we’re feeling and suffering through, we sometimes feel crazy saying it out loud – because our illness is sometimes less visible, and not everyone is sympathetic or even believing what you are saying.

3.  We can’t let fear keep us from getting answers, and finding out what’s happening – the ostrich head in the sand wont help your child.

4.  We need to respect the fact that we know our children better than anyone, and truly are the only ones that can make a difference for them.

5.  Catching issues sooner than later is best – stop things before a bigger problem emerges

The crappy Microbiome I was born with, was certainly passed on to my daughter, and I’ll do all I can to help restore better gut health to her and prevent any larger issues from arising.  Talking about children and their health issues is never fun, or easy, but in this case I felt it was necessary.  I hope this message from the heart helps.

 

 

Fitness Friday – Burpee Challenge 30 days of feeling good~

Hello AIP Community,

It’s time for a 30 day fitness challenge – it’s one movement and it can be done in addition to your workouts.

Today you will set the clock as follows

Level 1 – 1 minute

Level 2 – 2 minutes

Level 3 – 3 minutes

Do as many burpees as you can in the time for your level.  Write that # down.  Each day add 2 burpees to that #.  So if today, you get 10 burpees, tomorrow you do 12, then next day 14, and so on!

Watch the video for form and scaling!

Keep moving to keep moving, friends!

 

Monday – Lupus awareness and Inflammation reflection

Here’s our post from IG.  Each week we highlight one of 100 Autoimmune diseases.  Today I stepped back for a moment and made some observations – so obvious in retrospect, but things come to us at certain times, so we take it as it comes – here’s what I wrote:

There are 100 autoimmune diseases and of all the ones I’ve been researching there is one common thread – inflammation. And if there’s one thing I can share with you from my own experience and countless other people I’ve helped with the Autoimmune Protocol, cutting out the foods and toxins that cause inflammation gives you your health back. Is it difficult cutting out all the foods you’ve spent your life eating? Absolutely. Is it easy living day in and day out feeling like sh*t? Absolutely not. So take that leap of faith and dedicate the next 90+ days going 💯 AIP. There are no cheat days because that’s only cheating your health and halting progress. Kat and I are here for You. We love this, we heal from this and there’s no reason why you won’t heal too. Community and support makes all things possible. We’re so thank you that You are a part of our AIP Community ❤️ #lupus #aipcommunity #aipworkouts#AIPworks #aipforhealth #glutenfree #inflammation #starttoday #bewell#wearehereforyou

It is our SINCERE hope that through the information and experiences we share with all of you through our website, IG, Twitter, FB and Pintrest accounts that we touch lives and HELP others.  It was a lonely journey for us when we got started, so we hope that having a community of supporters and friends gets you to better health.

Fitness Friday!

Happy Friday, friends!  Do a little something to get active today.  Listen to your body, check out the 3 levels, and workout according to YOUR needs.  Pay attention to your form and make sure you’re doing it correctly 🙂